Educational Web sites Related to Genetics and Health
www.genome.gov
The National Human Genome Research Institute leads the Human Genome Project for the National Institutes of Health, conducts cutting-edge research in its laboratories and supports genomic science worldwide.
The U.S. Department of Energy (DOE) and the National Institutes of Health coordinate the Human Genome Project jointly. This is the official website of the DOE on the Human Genome Project and contains a description of the project; a primer on genetics; and sections on research, education, medicine including ethical, legal and social issues.
www.cdc.gov/genomics/default.htm
This is the website of the Office of Genomics and Disease Prevention of the Centers for Disease Control and Prevention (CDC). This site provides visitors with information about human genetic discoveries and how they can be used to improve health and prevent disease.
Official website of the National Society of Genetic Counselors, the leading voice, authority and advocate for the genetic counseling profession.
The Genetic Alliance is an international coalition representing more than 300 consumer and health professional organizations with millions of members--all working together to promote healthy lives for everyone impacted by genetics. The Alliance supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies.
The Public Broadcasting Service companion website for the NOVA program titled "Cracking the Code of Life".
Genetic resources for Wisconsin families and professionals.
The Genetic Science Learning Center, a joint project of the University of Utah Eccles Institute of Human Genetics, School of Medicine and the Utah Museum of Natural History.
www.kumc.edu/gec/geneinfo.html
University of Kansas Medical Center information for genetic professionals, with clinical, research and educational resources for genetic counselors, clinical geneticists and medical geneticists.
University of Kansas Medical Center Genetic and Rare Condition Site, listing lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals.
The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies.
Since 1983, the National Organization for Rare Disorders has been working toward the prevention, treatment and cure of rare "orphan" diseases. NORD maintains three searchable databases and an alphabetical index of disease names.
http://www.faseb.org/About-FASEB/Constituent-Societies.aspx
A list of links to National and International Genetics Societies.