Clinical Trials

Test financial use cases

MMC - Marshfield

1000 N OAK AVE

MARSHFIELD, WI 54449

The Fabry Registry is an ongoing, international multi-center, strictly observational program that tracks the routine clinical outcomes for patients with Fabry disease, irrespective of treatment status. No experimental intervention is involved; patients in the Registry undergo clinical assessments and receive care as determined by the patient's treating physician. The primary objectives of the Registry are: * To enhance the understanding of the variability, progression, and natural history of Fabry disease, including heterozygous females with the disease; * To assist the Fabry medical community with the development of recommendations for monitoring patients and reports on patient outcomes to help optimize patient care; * To characterize and describe the Fabry population as a whole; * To evaluate the long-term safety and effectiveness of Fabrazyme® Fabry Pregnancy Sub-registry: This Sub-registry is a multicenter, international, longitudinal, observational, and voluntary program designed to track pregnancy outcomes for any pregnant woman enrolled in the Fabry Registry, regardless of whether she is receiving disease-specific therapy (such as enzyme replacement therapy with agalsidase beta) and irrespective of the commercial product with which she may be treated. Data from the Sub-registry are also used to fulfill various global regulatory requirements, to support product development/reimbursement, and for other research and non-research-related purposes. No experimental intervention is given; thus a patient will undergo clinical assessments and receive standard of care treatment as determined by the patient's physician. If a patient consents to this Sub-registry, information about the patient's medical and obstetric history, pregnancy, and birth will be collected, and, if a patient consents to data collection for her infant, data on infant growth through month 36 postpartum will be collected.

MMC - Marshfield

1000 N OAK AVE

MARSHFIELD, WI 54449

Review the workflow of updating the Milestone Dollars on Patient Event Milestones and the effect on Financial Reporting data.

MMC - Marshfield

1000 N OAK AVE

MARSHFIELD, WI 54449

test new velos insert 06_23_2025

MMC - Marshfield

1000 N OAK AVE

MARSHFIELD, WI 54449

test velos inser abstract 6_23_25 2

MMC - Marshfield

1000 N OAK AVE

MARSHFIELD, WI 54449

test ctms only PI update

MMC - Marshfield

1000 N OAK AVE

MARSHFIELD, WI 54449

Velos project with PIVelos project with PI

MMC - Marshfield

1000 N OAK AVE

MARSHFIELD, WI 54449

test ctms only iris insert

MMC - Marshfield

1000 N OAK AVE

MARSHFIELD, WI 54449

Test Protocol ChangeTest Protocol Change

MMC - Marshfield

1000 N OAK AVE

MARSHFIELD, WI 54449

Velos Only test 06242025Velos Only test 06242025Velos Only test 06242025

MMC - Marshfield

1000 N OAK AVE

MARSHFIELD, WI 54449